Computing Community Consortium Blog

The goal of the Computing Community Consortium (CCC) is to catalyze the computing research community to debate longer range, more audacious research challenges; to build consensus around research visions; to evolve the most promising visions toward clearly defined initiatives; and to work with the funding organizations to move challenges and visions toward funding initiatives. The purpose of this blog is to provide a more immediate, online mechanism for dissemination of visioning concepts and community discussion/debate about them.


NSF WATCH TALK-The Hidden Multi-Billion Dollar International Trade in Our Medical Data

April 19th, 2018 / in CCC, NSF, Research News / by Helen Wright

The next WATCH talk, called The Hidden Multi-Billion Dollar International Trade in Our Medical Data, from Adam Tanner, Author of “Our Bodies, Our Data:  How Companies Make Billions Selling Our Medical Records,” is Tuesday, May 1st 2018, Noon-1PM EST.

Adam Tanner is a leading expert on the business of personal data and privacy. He is the author of Our Bodies, Our Data: How Companies Make Billions Selling Our Medical Records (2017) and What Stays in Vegas: The World of Personal Data – Lifeblood of Big Business – and the End of Privacy as We Know It.  He is an associate at Institute for Quantitative Social Science at Harvard University, where he has been a fellow, writer and associate since 2011. He served as a Reuters news agency correspondent from 1995-2011, including as bureau chief for the Balkans (2008-2011), San Francisco bureau chief (2003-2008), and correspondent in Berlin, Moscow and Washington D.C. I haveappeared on CNN, Bloomberg TV, MSNBC, CNBC, NPR, the BBC and VOA, written for magazines including Scientific AmericanForbes, Fortune. MIT Technology Review and Slate, and lectured across the United States and in many countries of South America, Asia, Africa, Europe and in Australia.

Abstract

Soon after you tell your doctor about your intimate medical problems, data detailing your condition is sold commercially to companies that have nothing to do with your treatment or billing. The electronic medical record company may sell the notes about your embarrassing problem the physician logs into the computer. The lab performing the blood test sells a copy of the results. The pharmacy receives money for sharing the details of your medication, as does the insurer covering the cost of your treatment. Some say the trade may lead to big data scientific breakthroughs, others fear massive privacy violations.

The talk will be held in the new National Science Foundation building (Room 2030) at 2415 Eisenhower Ave. in Alexandria, VA 22314. The new security requirements require that everyone who enters the building have an entry badge, so please send an email to Cassandra Queen at cqueen@nsf.gov if you plan to attend.

NSF WATCH TALK-The Hidden Multi-Billion Dollar International Trade in Our Medical Data

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