SPECIAL REPORTS

The price of being wrong: Jonathan Page

Jonathan Page, at age 2, before he suffered a stroke and subsequent brain damage from an undiagnosed metabolic disorder. Jonathan's newborn screening test in North Carolina did not detect his condition at birth as it should have.
Jonathan Page, at age 2, before he suffered a stroke and subsequent brain damage from an undiagnosed metabolic disorder. Jonathan's newborn screening test in North Carolina did not detect his condition at birth as it should have.
Oliver Family Photo
Jonathan Page, 6, leaves a haircut appointment in October with his mom, Loree Oliver (left), and sister, Carli Carpenter. Jonathan suffered a stroke and damage to both sides of his brain after a newborn screening test in North Carolina failed to detect his metabolic disorder. He cannot walk on his own and suffers from significant disabilities.
Jonathan Page, 6, leaves a haircut appointment in October with his mom, Loree Oliver (left), and sister, Carli Carpenter. Jonathan suffered a stroke and damage to both sides of his brain after a newborn screening test in North Carolina failed to detect his metabolic disorder. He cannot walk on his own and suffers from significant disabilities.
Nanine Hartzenbusch, For The Milwaukee Journal Sentinel
Jonathan enjoys a sucker in his wheelchair in October.
Jonathan enjoys a sucker in his wheelchair in October.
Nanine Hartzenbusch For The Milwaukee Journal Sentinel
Barber Cliff Lockwood (left) gives a haircut to Jonathan Page in Charlotte, NC. Jonathan suffered damage to both sides of his brain during his stroke. His movements are now uncontrolled and lurching. Loud noises scare him. He has to take breaks every several minutes while getting a haircut.
Barber Cliff Lockwood (left) gives a haircut to Jonathan Page in Charlotte, NC. Jonathan suffered damage to both sides of his brain during his stroke. His movements are now uncontrolled and lurching. Loud noises scare him. He has to take breaks every several minutes while getting a haircut.
Nanine Hartzenbusch For The Milwaukee Journal Sentinel
Loree Oliver helps her son Jonathan Page, 6, into the barber shop.
Loree Oliver helps her son Jonathan Page, 6, into the barber shop.
Nanine Hartzenbusch For The Milwaukee Journal Sentinel